Cory Jacobson has spinal muscular atrophy, a form of muscular dystrophy. She is mom to 15-month-old Kinley, and wife to Ian Jacobson.
By Cory Jacobson
The question “What has SMA taught me?” was recently asked in a support group I am a member of. It really got me thinking so I thought I’d write out my answer. SMA has taught me a lot throughout my 24 years of life.
Doctors are “practicing”
I’ve learned that doctors are most certainly NOT always right. They have said things to me that have downright made me cry. For example, an OB doctor told my husband and I that he would need to be prepared to be a single father to our then unborn child because I was going to die during her birth. Clearly THAT didn’t happen.)
They will give out life expectancies to the already-traumatized parents when their babies are diagnosed. They are typically very wrong. They will act (and sometimes even directly state) that they are smarter than you and therefore know everything about you.
But, then you get some doctors who dedicate their lives to saving the lives of their patients. Ones who give out their personal cell phone numbers just in case you need them. Ones who learn things about you. Ones who take time to care for you in the very best way. Ones who admit they aren’t sure about something but will do research to learn more. THOSE are the good ones. Always be grateful for them.
Pushy parents are fantastic
My parents ALWAYS pushed me to try everything I possibly could. I wasn’t allowed to quit. I learned that I am capable of anything. If I have to do it differently, so what? Having SMA has taught me to appreciate the attitude my parents have instilled in me my entire life.
Attitude is EVERYTHING
If you think you can’t do something, you aren’t gonna be able to. But, if you set your mind to something, you can do it. I’ve had so many people tell me that things were impossible for me to do, but I did them anyways. Call it stubbornness but I don’t take no for an answer. I have accomplished a lot in my life that I’m very proud of (graduating college, skiing, traveling, getting married, having a child, working, giving speeches) and having SMA has given me a “no quit” attitude.
Confidence is King
At first, confidence was not something that came naturally to me. But, eventually, I came to the realization that if you don’t believe in yourself, why should anyone else? I had to learn to believe that, even though I’m different, I’m still smart, beautiful, funny, and worthy of the same things that everyone else is. This newfound sense of confidence afforded me the opportunity to experience so many wonderful things: an education, a loving and supportive (and sexy!) husband, a beautiful daughter, and so much more. I had to find confidence in myself before I could be independent.
Having SMA means that sometimes, things will really suck. It means that everyday things will be challenging. It means that I will have to be creative in nearly every aspect of my life. It means that many people will treat me differently. And when I say differently, I mean they will stare, ask stupid questions, discriminate, and the like. But, it means that I will be STRONGER for having overcome those daily challenges, and for trying to educate those people who treat me differently. It means I will be smarter and more creative for having to figure out innovative ways to overcome obstacles and adversity.
I’ve learned many things from having SMA, but this is just a little glimpse. SMA is not who I am, but it’s very much a part of me. I’ve learned to EMBRACE it and THAT is what SMA has really taught me; you’re given this life because you are strong enough to live it.